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Revista de neurología y medicina pediátrica

Volumen 7, Asunto 6 (2022)

Investigación

Parents′ Recognition of Side Effects Experienced by Children Taking Intuniv® and Information Sharing with Teachers: A Retrospective Cohort Study

Rie Ito* and Fumiko Ohtsu

Attention deficit hyperactivity disorder (ADHD) is a developmental disorder characterized by a lack of attention, hyperactivity, and impulsivity. Intuniv® was used to treat ADHD. The side effects of Intuniv®, including hypotension and sedation (sleepiness and drowsiness), have a significant impact on children’s daily lives. This study aimed to evaluate parents' perceptions of the side effects of Intuniv® at home, nursery schools, kindergartens, and schools. It also aimed to clarify the current state of information sharing between parents and school teachers. We distributed a self-administered survey form to all parents who visited Ito Pharmacy and had a child administered Intuniv®. We investigated the patients' background, whether the schoolteachers were informed by the parents about Intuniv® intake by their children, and the occurrence of side effects of Intuniv® administration. We also examined the means of sharing information between parents and school teachers when side effects occurred. The results revealed that most children experienced serious side effects. Approximately 92.5% of the parents informed the schoolteachers about Intuniv® intake by their children. Parents of children who experienced side effects at school used more frequent means of contact with teachers than those who did not experience side effects at school. Some parents who used frequent means of contact were aware that their children experienced hypotension. Frequent sharing of information with school teachers enables parents to be aware of the occurrence of side effects experienced by their children at school.

Mini reseña

Comparison of the Accuracy of a Paediatric Neurology Fellow and a Specialist Nurse While Following up with Children who have Epilepsy over the Phone

Willeke Talbot*

Epilepsy in children places a significant strain on the healthcare system. In addition to a lengthy waiting period for initial and follow-up visits, there are only a few pediatric neurologists available in the majority of developing nations, and caregivers face numerous financial and logistical challenges. To alleviate this burden, telemedicine has been proposed as an efficient alternative. A pediatric neurology fellow's telephonic consultation was compared to that of a specialty nurse; both oppose in-person consultation (the gold standard). One pediatric neurology fellow and one specialty nurse consulted telephonically with caregivers of epileptic children ages 4 to 18 at least 24 hours before their scheduled hospital appointment in a random order. Another pediatric neurology fellow who was blind to the telephonic consultation documented the same after the face-to-face interview during the hospital visit.

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